Here are some places on the internet which we think may be useful to Australians affected by or interested in Alpha-1 Antitrypsin Deficiency. Kindly note that these links are for informational or educational use only. Inclusion does not imply endorsement or approval by the Alpha-1 Association of any organisation listed.


Asthma Australia

Asthma Australia is an association of all the Asthma Foundations throughout Australia. Website

Asthma and Respiratory Foundation NZ

New Zealand’s not-for-profit sector authority on all respiratory conditions including asthma, bronchiectasis, childhood bronchiolitis, childhood pneumonia, chronic obstructive pulmonary disease (COPD), lung cancer and obstructive sleep apnoea. Website

Australian & New Zealand Society of Respiratory Science Inc (ANZSRS)

ANZSRS was formed in 1980 to serve the professional needs of scientists and technologists employed in clinical respiratory function laboratories. Website

Australian Health Promotion Association (AHPA)

Australia’s peak health promotion body, AHPA is the only professional association in Australia specifically for people interested or involved in the practice, research and study of health promotion. Website

Allied Health Professions Australia (AHPA)

The recognised national voice for allied health professions in Australia, representing and advocating for the role of allied health professionals in the Australian health system. Website

Alpha One International Registry (AIR)

The Alpha One International Registry (AIR) is a multinational research project, representing a combined research effort of nearly 20 countries. Website

Alpha-1 Foundation

The Alpha-1 Foundation is dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection and a cure for Alpha-1. Website

Alpha-1 Research Registry

A US-based registry enabling Alpha-1 affected people to contribute to the ongoing research efforts towards a cure for Alpha-1. Website

Australasian Hepatology Association

Peak professional body supporting and educating hepatology nurses and allied health professionals across Australia and New Zealand. Website

The Australian Liver Foundation

Established in response to the huge and ever-growing need for more research into diseases of the liver and bile duct. Secondly, because of the need to develop community education for those 6 million Australians already affected. Website

Big Fat Reference Guide

A comprehensive online manual about Alpha-1. Website

Breathe Easy Ipswich

A Queensland-based community group for those who suffer with respiratory and other chronic health conditions, and their carers. Website

Cardiac Society of Australia & New Zealand (CSANZ)

The Cardiac Society of Australia and New Zealand is the professional body for cardiologists and those working in the area of cardiology including researchers, scientists, cardiovascular nurses, allied health professionals and other healthcare workers. The Society is the chief advocacy group for the profession and aims to facilitate training, professional development and improve medical practice to enhance the quality of care for patients with cardiovascular disease. Website

COPD Foundation

The COPD Foundation was established to undertake initiatives that result in expanded services for COPD and to improve the lives of individuals affected by COPD. Website

COPD International

A nonprofit volunteer-based organisation the purpose of which is to provide information and interactive support relating to COPD patients. Website

Gastroenterological Society of Australia

Australia's peak body for the disciplines of gastroenterology and hepatology. Website

Heart & Lung Transplant Trust (Vic) Inc

The Heart and Lung Transplant Trust (Victoria) Inc. (HLTTV) is a not-for-profit association whose membership consists of heart and lung transplant patients, recipients, their carers and families. Formed in 1994, five years after The Alfred Hospital performed its first pioneering heart transplant, HLTTV is managed by a committee of dedicated volunteers who have each experienced the heart or lung transplant journey.Website

Lung Foundation Australia

Assists the relief of people suffering from lung disease, and promotes better lung health. Website

New Zealand Organisation for Rare Disorders (NZORD)

To support, assist and promote better health care and well-being for patients and their families living with a rare disorder in New Zealand. Website

Online Mendelian Inheritance in Man (OMIM)

Online catalog of human genes and genetic disorders. This link takes you directly to the Alpha-1 section of the site. Website

Ozlung Yahoo! Group

Lung disease support group for Australians and New Zealanders. Website

Pharmaceutical products to treat Alpha-1

Thoracic Society of Australia & New Zealand (TSANZ)

Peak body and health promotion charity representing a range of professions (medical specialists, scientists, researchers, academics, nurses, physiotherapists, students and others) across various disciplines within the respiratory / sleep medicine field in Australia and New Zealand. Website

Virtual Medical Centres

Australia’s leading source for trustworthy medical information written by health professionals based on Australian guidelines.


 The AAA has produced an information booklet which contains more detail about A1AD, and a poster for raising awareness. You can access the booklet and poster by clicking on the images below. The poster may be printed locally in A3 or A4 size. Please encourage your family doctor or respiratory physician to put a poster on display in the surgery or patient waiting area! For more information about A1AD, see our Links section.