Available to those affected by Alpha-1 Antitrypsin Deficiency
Registers are an invaluable source of information for medical researchers and others interested in working towards a cure for Alpha-1 Antitrypsin Deficiency. If you or your family members qualify as a participant in any of the registers, please do consider.
- An Australian register for Alpha-1 Antitryspsin Deficiency affected people is needed. For an Australian register to become a reality, a complex web of health and privacy legislation needs to be considered and overcome, as well as access to information technology resources, project management skills, and funds. Bottom line - it needs corporate sponsorship. If you are in a position of influence, or can add value in any respect, please do consider helping the AAA make this happen.
- Australia is in the process of becoming a member of the Alpha-1 International Register (AIR). This register requires the involvement of your respiratory physician. If your physician requires more information on how to particpate,
- Although administered by the Medical University of South Carolina in Charleston, USA, Australians and their A1AD affected family members can also participate in the Alpha-1 Research Registry. You can enroll online.
To assist research, lung affected Alpha-1 patients may also want to register themselves or family members on The COPD Foundation Research Registry based in the United States.
We are grateful to our past and present supporters. Please take the time to visit their web sites by clicking on the logos below.
If you or your organisation wants to support or sponsor the AAA, either generally or for a specific project, we'd love to hear from you. Specific projects or expenses for which we are currently looking for assistance with include:
- Accounting service
- Audit service
- Insurance expense
- Printing business card