To help celebrate Alpha-1 Awareness Month, an Alpha-1 Walk has been organised to start at 11am on Sunday 17 Nov 2019 at Albert Park & Lake in Port Phillip, Melbourne.
Local Matters is the Grill’d community donation program that sees each Grill’d restaurant donate AUD 500 back into the community every month. The donation is split between 3 local community groups AUD 300 / AUD 100 / AUD 100.
HOW YOU CAN HELP?
We’d love your support in receiving the highest AUD 300 donation! Simply head to Grill’d Eagle Street Pier during June for a burger and pop your Local Matters token in our jar. The group with the most tokens at the end of the month receives the largest donation.
It’s a simple (and delicious) way to show your support!
You’ll find us on a jar at Grill’d Eagle Street Pier
Alpha-1 Antitrypsin Deficiency (AATD) remains misunderstood by many family physicians. Testing for AATD is often discouraged or refused for the wrong reasons. This may help - Information Sheet for your Physician.
The AAA is pleased to give an enormous thank you to the Bluesand Foundation for a pledge of AUD 30,000 to assist with the establishment of a national Alpha-1 register for Australia.
More information and discussion available at the AAA discussion forums. (Austrailan and NZ residents only)
First announced at the 7th Alpha-1 Global Patient Congress, held at Dubrovni, Croatia, on 5 April 2019.
Alpha-1 Awareness Month has had another win, thanks to the driving force of Hariklia.
On the evening of 29 Nov 2018, Hariklia reached the point of being able to send in the AAA's submission to the Medicare Benefit Schedule (MBS)'s Review Taskforce, arguing for inclusion of genotyping and SERPIN A1 DNA sequencing for Alpha-1.
Hariklia, on behalf of all AAA members, thank you for seizing the baton and making this happen.
Thank you also to Linda Mundy and The Royal College of Pathologists of Australasia (RCPA) for the invaluable assistance with this process. As well as a thank you to Ben Lundie of Pathology Queensland, and Val Hyland, ex Pathology Queensland now of virtus DIAGNOSTICS, for vital information and insight along the way.
More discussion and information about this subject within the AAA discussion forums (for Australian and NZ residents only).